Around this time two years ago we got the call that our blood test had came back positive and that the chances of Myah being born with down syndrome were 100%
I remember being on the phone with the nurse who had called me and told me that my Panorama blood test came back positive, the nurse told me my chances were 100%. I had broke the news to Angelica. She took the news very hard and started to cry. I tried to keep me calm and not cry while still on the phone and wanting to ask questions. How can you say that it is a likely hood she would from have Down syndrome is 100% by just a blood test? How accurate is this test? She informed me that the tests are 99% accurate. She also informed me that the way they test my blood is they can get babies DNA from my blood sample and test it. I was so confused how they would get all that information by just a blood test i couldn't imagine how someone tells someone they are going to have a child with down syndrome by just a blood test, and that i had a 100% chance. The nurse asked me if we wanted an amniocentesis done to confirm which at first we said we weren't sure and we would get back to her. The nurse also asked me multiple times if we wanted to terminate our pregnancy. I said no multiple times and proceed to tell her we both worked with adults that have different disabilities so we would love our baby anyways. After i had hung up the phone i went to talk to Angelica, she was still crying about the whole thing which made me also cry. We cried it out and talked about the whole thing. Everything was such a shock to us We wondered about how it would be to raise a child with Down syndrome what would they able to do and what they wouldn't.
I (Ana) grew up around all kinds of people, kids and adults with different disabilities. I was a teachers assistant for a special needs class, so i did not take the news as bad as Angelica did, I was still devastated to hear the news. Angelica never grew up being around anyone that any kind of disability she knew one person her whole life so this is why she took the news so hard. She did not know what kind of life Myah would have. After contemplating wether or not to get the amniocentesis done we both decided that it was not worth the possible risks of having the amnio. It took awhile for us to actually get over the fact that our baby was going to have Down syndrome. I remember it being thanksgiving and crying while sitting on our bed because i thought Angelica was going to leave me because of Myah testing positive for ds. I just talked to my belly and said "I'm thankful for you and i love you no matter what, you are my child and i will treat you as i would any other child even if i have to do this by myself" Its not that Angelica did not want to help raise our child that made me feel this was it was the fact that she was so scared that made me feel this way. It took Angelica a month to get over the fact that our baby would have Down syndrome. Eventually she took the news as it was and cared for Myah no matter what. Giving my belly kisses, talking to her though my belly the whole nine yards. I know that getting a diagnosis is scary as it is but wondering if your significant other will be there with you through it is just as hard. Everyone takes the news differently in our case Angelica took it super hard and i was upset but was ready for this journey. By no means am i saying i was prepared for raising a child with special needs but growing up around special needs kids and helping them i knew that it was only going be as hard as you make it.
We were prepared for the worse, we knew that here could be health issues that were associated with Down syndrome. I was beyond scared because i know heart issues played a big part of Down syndrome and in my family we have a lot of heart problems so i just knew that she was going to have heart issues. Every ultrasound we had they checked her heart to make sure that everything still looked good. To my surprise Myah was born with no heart issues, she did have extra fluid in her kidney and had respiratory issues hence the reason she stayed in the NICU.
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