Myah will always be Myah not Down Syndrome

Yes myah has down syndrome, but she is not down syndrome. There is nothing down about myah, down syndrome does not define her. When we got the diagnosis that myah had Down syndrome we questioned if she would be able to do the "normal" things that typical kids do. Let me tell you she does everything a typical child does and more. Yes, we do take the scenic route but who doesn't love to learn with their child. Myah works so hard to do what come's easy to typical children and is excited and happy that she accomplished it. We're beyond happy when she accomplishes anything and everything. We are filled with joy and cheer her on every step if the way. Your child is only a baby for a short period of time so why not cherish everything they do. Every child learns at a different pace don't rush them they will eventually get it, it just might take a little more time. No one is perfect but your child is perfect for you.

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How we found out Myah would most likely have Down Syndrome

When we were 12 weeks pregnant we had an ultrasound done. The doctor came in and also gave me an ultrasound which i found weird because doctors don't normally do ultrasounds. Once he was finished he said that baby showed some markers of having Down Syndrome and that i should get tested for it. We had already decided prior to this day that we did not want any testing done we would love our baby regardless. Well we were scared so we agreed to have a blood test done. I got a phone call about a week later from a nurse who worked at the hospital. She informed me that my blood test came back that my baby had a 100% chance of having Down Syndrome. I was so confused, how could just a simple blood test tell you this. The nurse had asked me four times, yes four times if i wanted to terminate my pregnancy. Of course i said no. She asked me if i wanted to get an amniocentesis done i said no but that we would need to talk about it. We opted out on having the amniocentesis done because of the m...

It's normal

If you get the Down syndrome diagnosis it's normal to be scared and full of emotions. Because you have that "what if" in your mind, but don't be afraid you're child is able to do anything they put their mind to. It will just take them a little longer to learn but the scenic route is the best route. Don't believe doctors when they tell you that your child will not have a great quality of life, let your child be the one to show you how great there life can be. You can't possibly know how great your unborn child's life can be until they're brought into this world. Of course your scared who wouldn't be you had a picture of the perfect healthy child in your head, your child is still perfect they are in fact extra perfect. Just because your child has down syndrome does not mean that they are down. There is nothing down about down syndrome. Myah is the light of our days she has so much love in her and her smile is heart warming, it can make a bad ...

Breastfeeding Journey

Myah was a NICU baby and that made it very hard for us to breast feed every day. I tried to get her to latch every day but with her low tone it was hard. Myah was not gaining as much weight as they would have liked her to so they put her on formula to get more calories in her. Myah was getting both my breastmilk and formula. I wasn't producing much in the beginning so they also had to give her formula when i had no milk to give. Myah had developed jaundice so she had to be under the light as much as possible so that limited the time i has to try and get her to latch. Myah came home after a week in the hospital and we continued to try and latch at times it was hard for both her and i, so I continued to pump and give her milk out of a bottle. I developed an over supply of milk. I was on a strict schedule of pumping every two hours during the day and every three hours at night. Myah was sleeping through the night so i had to wake her up to give her a bottles since she was stil...

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