Myah will always be Myah not Down Syndrome

Yes myah has down syndrome, but she is not down syndrome. There is nothing down about myah, down syndrome does not define her. When we got the diagnosis that myah had Down syndrome we questioned if she would be able to do the "normal" things that typical kids do. Let me tell you she does everything a typical child does and more. Yes, we do take the scenic route but who doesn't love to learn with their child. Myah works so hard to do what come's easy to typical children and is excited and happy that she accomplished it. We're beyond happy when she accomplishes anything and everything. We are filled with joy and cheer her on every step if the way. Your child is only a baby for a short period of time so why not cherish everything they do. Every child learns at a different pace don't rush them they will eventually get it, it just might take a little more time. No one is perfect but your child is perfect for you.

Comments

How we found out Myah would most likely have Down Syndrome

When we were 12 weeks pregnant we had an ultrasound done. The doctor came in and also gave me an ultrasound which i found weird because doctors don't normally do ultrasounds. Once he was finished he said that baby showed some markers of having Down Syndrome and that i should get tested for it. We had already decided prior to this day that we did not want any testing done we would love our baby regardless. Well we were scared so we agreed to have a blood test done. I got a phone call about a week later from a nurse who worked at the hospital. She informed me that my blood test came back that my baby had a 100% chance of having Down Syndrome. I was so confused, how could just a simple blood test tell you this. The nurse had asked me four times, yes four times if i wanted to terminate my pregnancy. Of course i said no. She asked me if i wanted to get an amniocentesis done i said no but that we would need to talk about it. We opted out on having the amniocentesis done because of the m...

It's normal

If you get the Down syndrome diagnosis it's normal to be scared and full of emotions. Because you have that "what if" in your mind, but don't be afraid you're child is able to do anything they put their mind to. It will just take them a little longer to learn but the scenic route is the best route. Don't believe doctors when they tell you that your child will not have a great quality of life, let your child be the one to show you how great there life can be. You can't possibly know how great your unborn child's life can be until they're brought into this world. Of course your scared who wouldn't be you had a picture of the perfect healthy child in your head, your child is still perfect they are in fact extra perfect. Just because your child has down syndrome does not mean that they are down. There is nothing down about down syndrome. Myah is the light of our days she has so much love in her and her smile is heart warming, it can make a bad ...

The year of the helmet.

We never actually noticed that Myahs head was shaped weird. We started physical therapy and her therapist noticed that it was a little flat in the back. We asked her pediatrician if it looked ok and she looked at some X-rays that she had done and said that everything looked fine. We went back to her physical therapist a couple of times and she mentioned it again and she asked us if we wanted to get a second opinion and she could refer us to a clinic to get her scanned and see if she actually needed a helmet or not. We agreed to check it out and see if she needed it or not, we were informed that the longer she you wait the longer they will need to wear there helmet. We tried to get her in as quick as possible but the first appointment was more than a month out. We got her appointment set up and we patiently waited for her appointment. It was the day of her appointment and i was very emotional because i felt like she did need a helmet and just didn't want her to wear a...

Search This Blog