Myah will always be Myah not Down Syndrome

Yes myah has down syndrome, but she is not down syndrome. There is nothing down about myah, down syndrome does not define her. When we got the diagnosis that myah had Down syndrome we questioned if she would be able to do the "normal" things that typical kids do. Let me tell you she does everything a typical child does and more. Yes, we do take the scenic route but who doesn't love to learn with their child. Myah works so hard to do what come's easy to typical children and is excited and happy that she accomplished it. We're beyond happy when she accomplishes anything and everything. We are filled with joy and cheer her on every step if the way. Your child is only a baby for a short period of time so why not cherish everything they do. Every child learns at a different pace don't rush them they will eventually get it, it just might take a little more time. No one is perfect but your child is perfect for you.

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How we found out Myah would most likely have Down Syndrome

When we were 12 weeks pregnant we had an ultrasound done. The doctor came in and also gave me an ultrasound which i found weird because doctors don't normally do ultrasounds. Once he was finished he said that baby showed some markers of having Down Syndrome and that i should get tested for it. We had already decided prior to this day that we did not want any testing done we would love our baby regardless. Well we were scared so we agreed to have a blood test done. I got a phone call about a week later from a nurse who worked at the hospital. She informed me that my blood test came back that my baby had a 100% chance of having Down Syndrome. I was so confused, how could just a simple blood test tell you this. The nurse had asked me four times, yes four times if i wanted to terminate my pregnancy. Of course i said no. She asked me if i wanted to get an amniocentesis done i said no but that we would need to talk about it. We opted out on having the amniocentesis done because of the m...

The year of the helmet.

We never actually noticed that Myahs head was shaped weird. We started physical therapy and her therapist noticed that it was a little flat in the back. We asked her pediatrician if it looked ok and she looked at some X-rays that she had done and said that everything looked fine. We went back to her physical therapist a couple of times and she mentioned it again and she asked us if we wanted to get a second opinion and she could refer us to a clinic to get her scanned and see if she actually needed a helmet or not. We agreed to check it out and see if she needed it or not, we were informed that the longer she you wait the longer they will need to wear there helmet. We tried to get her in as quick as possible but the first appointment was more than a month out. We got her appointment set up and we patiently waited for her appointment. It was the day of her appointment and i was very emotional because i felt like she did need a helmet and just didn't want her to wear a...

Our crazy weekends

Angelica and i both work on the weekends so it gets pretty hard. Our day starts off with waking up around 7:30-8:30 am we brush our teeth and Myahs teeth and head to the living room. I turn on our projector and put on either YouTube learning videos or of course her favorite movie Moana. Myah watches tv while i make coffee and breakfast. After breakfast I usually get Myah dressed for the day. We just relax until its time for me to go into work. At 11am i try to see if Myah is interested in nursing and if she is i will nurse her. Around 11:15am i start to get my lunch packed and get myself dressed to go into work, I work from noon until 8pm. Before i leave for work i try to put Myah down for her first nap. We don't put Myah in daycare so I'm either with her or Angelica is, we work around each others work schedule to make it happen. Myah will wake up from her nap after about an hour to an hour and a half. Angelica will feed her lunch and clean her up and put in the living r...

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